Rare Disease Day 2021

On Rare Disease Day 2021, join Boston Rare Connections and the Chinese Organization for Rare Diseases in discussions regarding Lesch-Nyhan Syndrome

For Rare Disease Day 2021, Boston Rare Connections is collaborating with the Chinese Organization for Rare Disorders to host “Fight for Those Living with Lesch-Nyhan Disease (LND)”, an international virtual meeting focused on conversations regarding living with Lesch-Nyhan Disease. The meeting will feature medical experts who will discuss treatment options and current resources related to LND, as well as presentations and stories from patients and their families living with LND.

For more information about the virtual meeting, please email Joan Xi at joan.xi@rare-connections.org.