Boston Rare Connections is a registered 501(c)(3) nonprofit public charity patient advocacy organization focused on helping those with rare and undiagnosed disorders. By building public awareness for these disorders through education and informational exchange, Boston Rare Connections aims to support the treatment and early diagnosis for patients living with rare and undiagnosed diseases.
What We Provide
BRC is a space to share the stories and experiences of those living with rare and undiagnosed diseases, so that patients and their families can discover, connect with, and support each other.
BRC is a space to raise awareness for rare and undiagnosed disorders by providing information and resources online, allowing for better treatment and early diagnosis.
BRC is a space to promote and assist researchers and innovators working towards the treatment of rare and undiagnosed disorders.
Facts of Rare Disease
Distinct Types of Rare and Genetic Diseases
of Rare Diseases Lack an FDA Approved Treatment
The Average Time it Takes for Rare Patients to Receive an Accurate Diagnosis
Because of You, Love is not Rare
— Kevin Huang, a rare disease patient
We Want to Hear Your Voices