About
Boston Rare Connections is a registered 501(c)(3) nonprofit public charity patient advocacy organization focused on helping those with rare and undiagnosed disorders. By building public awareness for these disorders through education and informational exchange, Boston Rare Connections aims to support the treatment and early diagnosis for patients living with rare and undiagnosed diseases.
What We Provide
For Patients
BRC is a space to share the stories and experiences of those living with rare and undiagnosed diseases, so that patients and their families can discover, connect with, and support each other.
For Caregivers
BRC is a space to raise awareness for rare and undiagnosed disorders by providing information and resources online, allowing for better treatment and early diagnosis.
For Researchers
BRC is a space to promote and assist researchers and innovators working towards the treatment of rare and undiagnosed disorders.
因为有你, 爱不罕见
——黄如方
Because of You, Love is not Rare
— Kevin Huang, a rare disease patient
Rare Disorders without Borders
Rare Disease Day 2013 SLOGAN
Facts of Rare Disease
7000
7000 Distinct Types of Rare and Genetic Diseases around the world
95%
95% of Rare Diseases Lack an FDA Approved Treatment
4.8 Years
The Average Time it Takes for Rare Patients to Receive an Accurate Diagnosis
We Want to Hear Your Voices
Contact Information
Email: info@rare-connections.org
Phone: 1-617-435-2371
Fax: 1-617-286-3663